Harrison Ford and Brendan Frazier star in Extraordinary Measures opening this Friday, Jan. 22,2010. This movie is based on the true story of John and Aileen Crowley, who supply the money and energy to search for a cure for a rare disease that is killing two of their children, Megan and Patrick. John Crowley chronicled the whole experience in Chasing Miracles: The Crowley Family Journey of Strength, Hope and Joy.
Having your child diagnosed with a serious illness is a parent’s worst fear. Carla Oliver, MSW, CCLS, published tips for when you have an ill child with Web MD magazine, inside the article about Pompe Disease and the CBS film Extraordinary Measures. One of her tips says: “The family of the child is the expert … they are in collaboration with their doctors. A lot of the time Mom really does know best.”
The medical drama Lorenzo’s Oil staring Susan Sarandon is another excellent film that exemplifies the struggle that parents experience with health care. Sarandon plays the mother of Lorenzo a typical young child whose life is shattered when he’s diagnosed with a terminal disease. His parents feel helpless as they watch their son slowly succumb to the illness. Not satisfied with modern medicine, they research the disease and turn to a controversial remedy for help.
Bucking the system, creating your own solutions is sometimes what is required. Not all parents have the resources, knowledge, or other abilities required to do so. Parents face challenges every day in providing the best they can for their children whether it be food, shelter, clothing, spiritual guidance or any one of many more issues. I am glad that some parents are brave enough to blaze the trail for the rest of us to follow. My gratitude extends to those who work hard to share these exceedingly exhausting feats with the public so that we are able to avoid some of the same entanglements others have suffered.
That is going to be another heartbreaking movie. Movies with children’s illness is dreadful, but when the story is inspired by true events it really breaks my heart. I do agree with you that moms do know better, and in most cases the kids also know better than the doctors. One of my friend’s kids was diagnosed with diabetes when she was two years old. She is now in her mid thirties. On several occasions the doctors consulted with her regarding other patients. She was introduced to her disease and had been living with it way before some of these doctors considered going to medical school.
Thank you for sharing your insights Alexandra.
Margaret
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Margaret
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Harrison is incredbily talented. I don’t think I’ve ever not liked one of his movies.
He is definitely one of my favorite actors.
sorry.
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